Dave here, new member of this tribe. I’m a single FT parent with no financial help from the ex, little physical help, either. I’ve been on a leave of absence from work for 8 weeks and will be going back to work Monday. I took it because for several months leading up to November, fatigue, pain, memory loss, and numbness had increased to intolerable levels. When I started the leave, I figured that after 8 weeks of total rest, I would be back to normal. It hasn’t happened. My general physician sent me to a neurologist and the neurologist has sent me to UCSF MS Center. My first appointment is January 16th. I’ve had a brain MRI performed (August, 2007), a back MRI, spinal tap, and sleep study performed. I have not been diagnosed with anything yet, save a bad case of Restless Leg Syndrome.
My symptoms include:
~ Whole left side of body is tingly, sometimes numb, sometimes to the point of being painful
~ RLS
~ Sleep disorders
~ Short term memory loss
~ Insomnia
~ Decreasing tolerance of heat
~ Difficulty prioritizing important tasks
~ Geographical disorientation
~ Chronic fatigue
~ Chronic (deep/sharp) aches and pains
~ Depression
I’m not sure what I’ve got, all I know is that I’m in pain and I’m tired, and it doesn’t go away. I have some days that aren’t as bad as others, but overall, I’m scared shitless about going back to work Monday.
The hardest part is the waiting. And reading stories about wheelchairs and diapers. (I was on a nationally ranked athletic team in college.)
I have read stories about working/playing/living through the pain, but I wonder what thresholds I read of. I have extremely sharp and deep pains mostly in my shoulders, getting up out of chairs and beds can be very painful as well. My legs feel like they are on fire, and the left side of my body is tingly and getting worse. I can type and drive, but I don’t know if I can last 8 hours/day, 5 days /week.
Apologies if you see this posted more than once, but I just didn’t know which was the most appropriate tribe.
Dave
My symptoms include:
~ Whole left side of body is tingly, sometimes numb, sometimes to the point of being painful
~ RLS
~ Sleep disorders
~ Short term memory loss
~ Insomnia
~ Decreasing tolerance of heat
~ Difficulty prioritizing important tasks
~ Geographical disorientation
~ Chronic fatigue
~ Chronic (deep/sharp) aches and pains
~ Depression
I’m not sure what I’ve got, all I know is that I’m in pain and I’m tired, and it doesn’t go away. I have some days that aren’t as bad as others, but overall, I’m scared shitless about going back to work Monday.
The hardest part is the waiting. And reading stories about wheelchairs and diapers. (I was on a nationally ranked athletic team in college.)
I have read stories about working/playing/living through the pain, but I wonder what thresholds I read of. I have extremely sharp and deep pains mostly in my shoulders, getting up out of chairs and beds can be very painful as well. My legs feel like they are on fire, and the left side of my body is tingly and getting worse. I can type and drive, but I don’t know if I can last 8 hours/day, 5 days /week.
Apologies if you see this posted more than once, but I just didn’t know which was the most appropriate tribe.
Dave
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Re: RLS -> MS? Or FMS? Or CFS? Or___?
Sat, January 12, 2008 - 9:05 AMKeep us posted Dave. This the right place. -
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Re: RLS -> MS? Or FMS? Or CFS? Or___?
Sun, January 13, 2008 - 12:15 PMThank you all for your replies and support.
In late November, I started the leave of absence. I pretty much did nothing but sleep the first week, and then started to feel much better for about the next nine days or so. I thought that if this is all I needed, then I should have no problem going back to work, possibly even earlier than at first anticipated. I slid back into pain and fatigue for most of December and into the first of January. I was starting to get worried again that I would be returning to work in pain and fatigue, when I started to feel better for the second time in 8 weeks. Still getting lots of sleep. The first two days of work weren't bad this week, but the last three were noticabely worse.
My boss knew I was having difficulties both physically and psychologically, he even knows I'm going to UCSF MS center when he wrote me up big time this week for mistakes made before I left and was not able to catch and correct on my own. Talk about hitting a guy when he's down :-(
On Wednesday, I'll be at USCF for my first appointment there.
I'll have to go back and re-read, but it sounds like flare ups can last months at a time, no?
Working FT, and FT parenthood will keep me from writing as often as I would like, but I'll be back. Thanks again.
Dave
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Re: RLS -> MS? Or FMS? Or CFS? Or___?
Sun, January 27, 2008 - 1:55 PMit gets better in some ways, Dave. Understanding comes.
<<RLS -> MS? Or FMS? Or CFS? Or___?>>
Seriously, this SHOULD look like a foreign language to all of us, but it makes perfect sense to me!
May you find peace and understanding here and off in your real life, too. Here's hoping for peace and understanding for all of us broken bodies.
luck and such,
Zanne -
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Re: RLS -> MS? Or FMS? Or CFS? Or___?
Sun, January 27, 2008 - 5:06 PMAlthough they no longer use 'tapes', live music 'tapers' will mark segues with '->'. That's where I got that from.
Beauracratic snafu kept me from being seen @ UCSF MS Center. I was about this close > < to paying out of my own pocket, but got a rescheduled appointment this Weds. In the meantime, the pain is still knocking the shit out of me.
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