Advertisement
O.K. So I'm done with disc replacement surgery and after a few months I'm still in much pain.
Long story short, I have 2 doctors telling me that long-term slow-release opiates can actually *cause* pain and in order for me to know if the surgery worked or not I have to stop my Oxycontin.
I have had a love-hate relationship with Oxy throughout the years. Slowly my dosage had crept up alongside my tolerance and I knew in the back of my mind that I was headed for a brick wall.
Well, my prescribing doc says "10% decrease per month" will bring me back to ground zero with little to no withdrawal symptoms. My problem with that is at 180mg per day, its gonna take a while :-/
My thought is to just rip the band-aid off quickly, so to speak, and just drop in 50%-50% intervals or something more radical than the 10% rule. I could check out of my "normal" life for a couple of weeks and just cuddle up with a 5-gallon bucket and a whole lot of weed (thank you med marijuana card) and have it out.
The other option is to check into some clinic, provided my insurance covers it, and go along with their program. The drawback to that is no weed, missing my house for 30 days, social stigma (I know, lame excuse that is basically only in my head), and did I say no weed?
Now this could be my big fat ego talking, but something about toughing it out is calling to me. I have had an episode with Fentanyl patches in the past that, when I stopped, caused tremendous withdrawal symptoms that lasted for 4 days, so I think I have a little idea of what to expect.
So, anyone out there ever found themselves in a similar situation? What did you do? Any advice or stories with a similar theme is appreciated.
Best to all.
Long story short, I have 2 doctors telling me that long-term slow-release opiates can actually *cause* pain and in order for me to know if the surgery worked or not I have to stop my Oxycontin.
I have had a love-hate relationship with Oxy throughout the years. Slowly my dosage had crept up alongside my tolerance and I knew in the back of my mind that I was headed for a brick wall.
Well, my prescribing doc says "10% decrease per month" will bring me back to ground zero with little to no withdrawal symptoms. My problem with that is at 180mg per day, its gonna take a while :-/
My thought is to just rip the band-aid off quickly, so to speak, and just drop in 50%-50% intervals or something more radical than the 10% rule. I could check out of my "normal" life for a couple of weeks and just cuddle up with a 5-gallon bucket and a whole lot of weed (thank you med marijuana card) and have it out.
The other option is to check into some clinic, provided my insurance covers it, and go along with their program. The drawback to that is no weed, missing my house for 30 days, social stigma (I know, lame excuse that is basically only in my head), and did I say no weed?
Now this could be my big fat ego talking, but something about toughing it out is calling to me. I have had an episode with Fentanyl patches in the past that, when I stopped, caused tremendous withdrawal symptoms that lasted for 4 days, so I think I have a little idea of what to expect.
So, anyone out there ever found themselves in a similar situation? What did you do? Any advice or stories with a similar theme is appreciated.
Best to all.
Advertisement
Advertisement
-
Re: Detox
Fri, May 8, 2009 - 7:34 PMYes, withdrawal from opiates is absolute hell.
But it passes.
The first 3 days are surely much worse than hell, actually.
Yet it passes.
Tough choice, bro. Others here must have better advice, but I feel for ya. My experience with opiates lead me to my current mantra which is THE PAIN IS NOTHING TO THE MADNESS... and for all of y'all here in this tribe, you know that's saying something! -
-
Re: Detox
Sat, May 9, 2009 - 12:01 AMOMFG.
You mean I had a 5-level fusion, and screws into my pelvis, and am taking 1/6 of the dose you are taking? And still in pain? I am beginning to get pissed off at my doctor now. -
-
Re: Detox
Sun, May 10, 2009 - 7:41 PMI am going through Cymbalta withdrawal right now. Yes, Cymbalta. That cute little fibromyalgia "depression hurts" pill.
My life is suicidal ideation and panic attacks 24 hours a day. I've lost eleven pounds in nine days. The doctor says it's to be expected, and I just have to ride it out. It will pass.
DO DOCTORS EVEN KNOW WHAT THEY ARE PRESCRIBING? -
-
Re: Detox
Sun, May 17, 2009 - 9:50 AMjust ride it out... that's bullshit. if docs have the knowledge to prescribe these meds at these levels, they should have an equal knowledge of how to undo in. i've never had a doc who knew too much about coming off meds. neither one of you guys should have to face the decision of staying on the meds or facing withdrawal. what the hell kind of choice is that. it's been pissing me off. i ultimately faced withdrawal as well which is how i ended my affair with opiates... my doctor congratulated me when i told him. -
-
Re: Detox
Sun, June 14, 2009 - 4:54 PMThanks, Zanne. You nailed it. These docs prescribe this shit because the pharmacy reps bring their staff sushi on Fridays, and not necessarily because they have a complete understanding of side-effects and whatnot. They don't always know what its *really* like to come off this stuff.
As expected, my detox has pretty much sucked. I called around and got pre-authorization from my insurance to go to a in-patient 7-10 day medical detox facility. They were supposed to put me on suboxone, then taper me off the suboxone. Well, on day 2, when I was really feeling like shit, my insurance calls them and had changed their mind. They then said they would only pay for 3 days and the rest was going to be out-of-pocket at $1,500 a day because I was only opioid dependent and not an addict..
So, I basically got my ass kicked to the curb on day 3 with a bunch of prescriptions for shit I have never taken before and little to no solid plan on how I'm supposed to proceed.
The suboxone works very well at controlling the side-effects, but later I read it too is an opiate from which I will have to detox. WTF?
So now I'm trying to taper off the suboxone. The PM doc from the clinic has not returned my calls. He's over 1 hour away and I've only seen him once for about 30 minutes.
Aside from the debilitating stomach cramps, I'm a total fucking emotional wreck. One moment I'm hyper-vigilant and cleaning windows, then a tsunami of depression slams down on the top of my head. suddenly I'm alone, drowning in self-pity and re-experiencing every memory of despair and hopelessness my brain can excavate . My wife and son are on holiday and I'm going insane alone in my house feeling, pissed, scared, horny, vulnerable, full of rage, sorrow, an overwhelming sense of compassion, and then grief. And sometimes all at once. This must be the 'maddness' to which you were referring, Zanne.
I'm not used to this kind of ride. Usually I'm pretty much even-Steven, aside from the back pain.
I know dissolving a suboxone under my tongue will fade this chaos back to clarity, but don't want to prolong the inevitable.
On another note, I will say that my back pain levels are at an all time low. So far it does seem that the slow-release opiates were, in fact, making the pain worse. Pain medicine causing more pain. What a fucking racket.
Thanks for listening.
-
something other than withdrawal!
Sun, June 14, 2009 - 5:16 PMamen to that Zanne
The horrible experience of Stanford Pain Clinic, Ivy League Disappointment, was awful from start to present. The 5 year wait to get in was the best part.
Eventually, it became clear my Dr was only inrterested in cutting meds. It wasn't just more important than recovery, lowering pain, quality of life, ability to wear clothing or hold down food, wasn't a concern AT ALL.
Every visit, I had to write out what I was prescribed, how it was prescribed, and how I was taking it. And bring all bottles and pills.
Then, before even looking at me, much less asking me about my health the PhD would ask, how many mgs are you on?
I cut 25% in 3 weeks. It was easy for me. Not because I have any qualities, just lucky this time. I am the worst about taking pills. Takes a helluva lot to get me to do it. So not taking 'em came naturally.
The pain is hard, there are good people helping me now, lots of meditation, and herbs.
werd
I'm pretty well experienced with too many drs spread along the best coast; SF Bay, PdX, Vancouver BC, and then some in South Carolina.
not a beautiful struggle
getting there tho'
closer everyday -
-
Re: something other than withdrawal!
Sun, June 14, 2009 - 5:27 PMGod dammit to hell I wish you were not suffering so much Nops. I am right there with you.
-
Re: something other than withdrawal!
Sun, June 14, 2009 - 8:16 PMYou guys all are awesome. Feeling a profound support and connection from "strangers" is incredible. No exaggeration, knowing right now that there are people who actually can understand what its like to go through this, and to know they are aware of what's happening with me and give a shit, is keeping my faith in humanity.
Love to all.
Now I'm off to float in a sudsy tub for a while... -
-
Re: something other than withdrawal!
Mon, June 15, 2009 - 4:02 PMnops, get yourself a bowl brother and something green to put in it. weed can help the withdrawal symptoms tremendously.
it is madness, but you are a warrior now, remember? -
-
Re: something other than withdrawal!
Tue, June 16, 2009 - 9:35 AMMe Nops. Me Warrior. ;-)
Zanne my friend, you were right.
I threw back a Valium and took in some green ('Blue Dream,' a sugary Indica-dominant hybrid), and my stomach knots untied themselves, and the mania in my head was extinguished by a warm, comforting wool blanket that brought me down to earth and tucked me into a long, restful, welcome, sleep.
I woke up this morning and 'Bing!' I have no withdrawal symptoms, no cravings, and my pain is reduced by a number or 2.
I re-read my previous post and it exposes me so much I thought about deleting it in shame, but then I thought of the 1 or 2 people whom might stumble across later it and maybe it will help them. What's interesting is you have all now seen me at my worst, which is more than I can say for the people whom I interact with in regularly the flesh. I love the internet.
Honestly, this was the only song I was thinking of all morning:
www.youtube.com/watch
;-) Thanks, guys. You helped me get through this. -
-
This is the maximum depth. Additional responses will not be threaded.
Re: something other than withdrawal!
Mon, July 6, 2009 - 12:30 AMHow are you doing by now, Nops? -
-
Re: something other than withdrawal!
Thu, August 20, 2009 - 6:34 AMThanks for asking, Melissa. I'm sorry to take so long to reply but my relationship to time has been changed since my surgery.
Well, I'd have to say that my pain level from the previous source has improved, but unfortunately still present to a degree, and now I have a new pain slightly higher up my spine.
The disc replacement surgeon had woven a compelling argument for me to drop all pain meds, and after that process was complete, we have verified that there is still a significant level of pain.
For me, I'm learning Its difficult to state an accurate measure of discomfort. There are so many ups and downs it almost takes about a week to get a sense of a pain level change, for better or worse.
In all, I'd say its slightly better, mostly because I'm getting better at listening to my body and altering my expectations.
I went to another PM doc and he basically told me that I needed to go back on pain meds. He said I could go back to Fentenyl, Oxycontin, Suboxone, Valiume, or whatever else I thought would help restore what I would call "meaningful activity" in my life.
Its so frustrating, you know? You ask 3 doctors and get 6 opinions, and they all contradict each-other. As you have read from my previous posts, withdrawal was no walk-in-the-park, but I miss hiking and outings with my family and sitting through a meal at a restaurant. I don't know what to think or do anymore other than just keep one foot in front of the other and do my best to acclimate.
And after all this, my marriage is on the rocks, but that's a story for a different thread. ;-)
peace.
-
-
-
-
-
-
-
-
-