Pain and love

topic posted Tue, December 18, 2007 - 7:46 AM by  offlineMoonmom
Do other people have any experience maintaining a relationship when you have chronic pain.
Do you find you are ever stuck between wanting the wonderful connectedness that love brings and the disconnectedness that comes with narcotic drugs, and antidepressants. So far I have tried hard to stay off all that stuff but am struggling with isolation after an ended love affair. It's just hard wanting this essential connection with another, and also wondering what you have to offer. Am I a bad risk?
Am I no longer valued as a lover, friend and companion.
Can I be those things any more, or is the pain my identity?
I hope not
posted by:
Moonmom
SF Bay Area
  • Unsu...
     

    Re: Pain and love

    Sat, December 22, 2007 - 4:27 AM
    I don't have any experience with it at all. The pain was too much to consider any kind of relationship. I knew I could not fulfill the physical obligations of being a friend or companion (like "Let's go somewhere and do something!" and I don't want to move). People are not very kind and considerate, in general, of people in pain. You have to skip all those people. Especially the ones who use your condition against you. There are a lot of those kinds, unfortunately.

    The isolation sucks, but I just can't do the things other people do. I have a good mind. In that it works, I guess. But that doesn't seem to be enough for most people.

    Realize that people tend to want a "fast-food relationship". Drive up, pick out what they want, and drive off. And we just aren't going to be picked. We're expensive. We're high maintenance. We require a lot of time. We are not that predictable (as far as mood and level of pain from day to day).

    The kinds of people that might be attracted are few and far between.

    Likewise, OUR requirements for others, we have them. And there are few people that WE would consider to be acceptable for us. An example might be traveling. Many people love to travel. People in pain don't travel well. I don't, that's for sure. So, no, I don't want to hook up with some guy who is a travel buff or loves weekend jaunts or plans extensive holiday.

    His hobbies and/or goals, like maybe he wants to bike across Europe. Um. Not with me. It sounds like fun and romantic and adventurous, but I'm not going to be biking across Europe, or even biking down the street, as I can't image how bad the pain would be to be bent like that.

    There's a lot that takes place when we become familiar with long-term pain. Changes in our own lifestyles and lives is hard. But there ARE people who have similar lifestyles that may not be related at all to pain. I'm thinking of people that prefer a comfortable chair and a good book instead of biking across Europe. People that work near home and putter around the house, rather than having to be on-the-go all the time.

    Things that I could be enthusiastic about and participate in, have to be fairly limited in physical aspects. But mental things, I can do. Short walks. Talking about life, ideas, books. Playing board games. Enjoying nature, but I can't do a lot of hiking to get to "nature" anymore.

    Realize too, that many of these changes take place as we age. The changes in abilities to do activities. The potential for pain, injury, just because we get old and achy. So we are kind of ahead of the rest of our age groups. They'll catch up with us eventually. Ha!

    And since that is true, we might want to look for someone with whom we are mentally compatible with anyway. Right? If we're going to end up old farts, chatting up each other about what medications we're on, what aches the most, what doctors we see, we won't be doing any biking across Europe then either. So, we need to find those interesting mental connections, that will last a long time.

    What we have to offer is our mind. Our personality. That's what's going to be there (we can hope) when we are very old. Someone that excites our mind or makes us laugh or makes us think. Someone who will accept us as we are, both now, and then.
    • Re: Pain and love

      Sat, December 22, 2007 - 4:00 PM
      nicely written and lots of truth ?.


      >What we have to offer is our mind. Our personality. <

      please don/t forget our hearts, our souls, our love.

      hoping everyone here has an improved and happy new year.

      james
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        Re: Pain and love

        Sat, December 22, 2007 - 4:30 PM
        I would never forget hearts and souls and spirits and love. Those too, they are in the mind. They are something that cannot be bought or sold. They have no physical substance, and can be present in a pain-free body, a pain-filled body, or a paralyzed body. In young bodies, old bodies, and all the bodies in between.

        The body is to the mind as a car is to the body. A way to get around. And it really sucks when we have a car that breaks down or isn't reliable, or doesn't run as good as the rest. We might have a gas-hog body that has to stop for fill-ups. Or one that keeps going for ages. We might have a fancy one, or one that's kind of rusty. We might have one that stops or stalls or sputters.

        But it's the only one we have. We can't trade in our entire body for a new one. We can get a few replacement parts, though. Ha!

        Anyone who makes the judgment of my car not being good enough, is probably not someone I need to be around. It's the only one I have. And I'm getting it worked on, but it will never be a fancy one. Just like my body, it will never be a fancy one, it's what I have and I do what I can. When I can.

        When people who don't understand pain make comments, they aren't much different than the ignorant comments from people about cars. Like "why don't you just get a new one?" or "just get it fixed!" The finances aren't there all the time for the car. And the energy isn't there all the time to do things for my body. I need exercise. It hurts to exercise. Most people do not do things that hurt intentionally. Like "I think I'll just whack my shin into the coffee table." We avoid it. So too do I avoid things that cause pain.

        It's a battle.

        Just do what you can, when you can. Forget about the judgments coming from people who don't get it.
        • Re: Pain and love

          Sun, December 23, 2007 - 11:47 AM
          This made me laugh "I think I'll just whack my shin into the coffee table." That is a reasonable comparison. Never really thought about it that way. I just felt bad that I wasn't good enough to suffer through it, like a bitter pill.

          But I need love...I think
          I'm 45, it's a long lonely road without snuggles. I like art cultures. I can ley in bed and watch indie films, walk a pretty long way, be a good understanding friend. And health permitting travel a little. Granted if I gave into meds I'd be pretty friged, but willing. And I'd probably be less engaged in stuff that takes energy. I'm trying to steer clear of meds though, successfully so far....with procedures, though it's frustrating. I'm trying to stay active and engaged. That is what effects the neuroplasticity of the brain and keeps depression away.
          Stupid pain
          • Re: Pain and love

            Mon, February 4, 2008 - 12:42 PM
            So, if any loneliness and lovelessness (or some degree of those things) is in part due to our pain, there MUST be at least a few concrete things that we can learn to do to make it easier for ourselves and those on the other end of our relationships?

            What are they? Damned if I know.
            • Re: Pain and love

              Thu, February 7, 2008 - 11:21 AM
              I am in a relationship that began long before my chronic pain did. To say it has not effected it would be a lie. It was a struggle to explain to my wife and family that little things they could do, I could not. It probably took years for them to understand the sheer agony I was it at times. The numerous pain killers (legal and illegal) became the first clue. The second was an inablity to move without a scream. And finally the destruction of my sex life. In the meantime I developed a friendship with a woman who was terminally ill. Our friendship and her death showed how far my family and I had drifted apart. My breakdown after her death was dark and lonely. I asked my wife for a divorce, as I decided I it was easier to die alone than constantly be lectured by my wife and family that I couldn't be THAT ill.
              By that time, some awareness of my condition had leaked thru to them. Perhaps it was watching my beloved friend die...I don't know.
              But suddenly my wife was willing to hear my complaints and my requests for help. She even began working from home at times to help me thru the day. (I'm a house husband and proud of it!)
              My children realized I could not always play taxi...or be there for them...and they began to appreciate it when I could.
              To say things are wonderful now would also be a lie.
              But things are better.
              I have a loving relationship again, though it can never be truly physical.
              And I'm not willing to die alone.
  • Re: Pain and love

    Tue, February 12, 2008 - 3:26 PM

    For me, I am (kinda) lucky to have a partner whom also experiences some degree of pain fairly regularly so she can commiserate with me when times are rough. My pain deals still occasionally screw up the harmony in our relationship, but I guess all relationships have their hurdles.

    I actually think that dealing with chronic pain forces one onto a path of self-awareness that can help with relationships. I didn't want pain to be my identity either. I fought and fought and fought but later realized that this struggle alone was becoming my identity, and for me that was worse. Actually, it was learning more about Frida Kahlo that helped inspire me to try and move on. I have conceded to pain as being part of my identity, but just one part.

    Though you may not feel like it, you are so much more than just pain, and therefore you have so much more than just your pain to offer in a relationship.

    For me, having someone close in my life whom understands first-hand what dealing with pain is like is very important.
    • Re: Pain and love

      Sun, May 25, 2008 - 12:28 PM
      It's been a huge problem for me. Anyone who I get involved with Could be with a healthy woman, instead of me.

      I have had a few relationships since my accident.


      Nothing now.

      I can't afford to live. Several "friends" have honestly asked me about/suggested prostitution.

      It's such a nightmare.

      If it weren't for baseball and music
      I would never smile.

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