AAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHH!!

topic posted Wed, March 26, 2008 - 2:24 PM by  Zanne
Sorry, I just had to scream, and somebody had to hear it.
posted by:
Zanne
Boston
  • Re: AAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHH!!

    Wed, April 9, 2008 - 7:05 PM
    --well said !
    • Re: AAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHH!!

      Sun, May 25, 2008 - 12:17 PM
      I have long forgotten what it's like to not have pain.
      It's been over 7 years since I have felt ok.
      Since I have had two mintues without horrible pain.


      I'm so tired.
      • Re: AAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHH!!

        Tue, June 3, 2008 - 1:36 PM
        Its terribly lonely to be in pain for years and years regardless of how many people live in or near your life. Its impossible for people whom haven't felt this first hand to imagine what its like, and honestly I think after a while outsiders don't like to hear about it anymore.

        I go to the grocery store and the bagger asks me, "How are you doing today?" I know they are just going through the motions and really couldn't care less. I smile when I can, but have learned better and stopped answering that fucking question from strangers.

        Lurking around here and re-reading this thread for the millionth time helps me. It helps me because (this is a little embarrassing) while I hardly know any of you, the fact that we are here and reading each-other's words makes me feel like I'm part of a community of people who can actually understand what I'm going through. When I have extremely bad days, I lay in pain and think about what I've read on the pain tribe. I think about these posts and I don't feel quite as alone. It gives me a little hope.

        Hang in there, Mermaid.
        • Re: AAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHH!!

          Thu, June 19, 2008 - 9:27 PM
          i want to applaud all those who have posted here and those who have read and understand.

          i want to applaud myself as well. 8 years for me. others will never know what it's like and thank god for that.

          our individual stories will only truly be known by ourselves. thank god for that.

          i'm proud of you all, whether in this tribe or not, who carry on.

          have a listen to U2s "walk on".

          I AAAAAAAAAAAAHHHHHHHHHHHPPPPPPLLLLLLLLAAAAAAUUUUUUUDDDDDDD us.
  • Re: AAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHH!!

    Sun, May 25, 2008 - 5:27 PM
    AAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHH!!

    12 years, not a single day since I fell in 96 have I been without pain. There really is not enough medication to make it go away, and too much in the world to make you daffy.

    The ones who understand cannot come out to play anymore. The rest think I spend too much time in my head. I am screaming, everyone hears it, no one sees why, they stopped trying to care many years ago, most moved away to get away.

    I have lost all semblence of time and space. I wake up and cannot tell if its morning or night. 3am 3pm I have no clue and do not want one either. some days Im up all night others all day I forget what month it is what day of the week what year even. I write checks and forget what year and even which century in some cases..

    Other days I wake up and its allllllll toooooo real. I know where I am, literally figuratively mentally and physically. All the clues are still there. Ya know?

    AAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHH!!
    Thanks for the scream.

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