I know that this will be useful to all of you, and am pleased to share my latest insight. We need to be able to communicate to our loved ones that their unconditional love is important to us, and that we desire them to be free from guilt or feelings of helplessness because they are unable to assist us to be free from pain. Here is the post I wrote in a thread about this topic:
"How lovely to synchronistically find this post.
I live with chronic pain from a moderate disability, and the pain affects every waking moment of my life. I am never free from it. Some days are better than others.
I learned long ago that nobody wants to hear about it.
Then, I shut down and dropped out of society.
Now, as I find myself surrounded by people who love me unconditionally, by design, as I consciously choose to love them unconditionally with reckless abandon. I find that we (as a group) struggle with my inability to navigate life as an ordinary person with no pain would be able to do.
I want to participate in my life and to experience all things, as does the Creator of All That Is.
I have a dear friend who expresses a desire to remove my pain, and a level of frustration that he cannot do so.
After having processed this a little bit, I feel confident that I need to communicate with him that he does not need to feel badly for me because I am in pain, but rather, simply to honor my needs by loving me unconditionally (which he already does). If this means carrying something for me that I cannot, or allowing me to take a time out and rest rather than join a group for an outing, or whatever - no one could ask for more than that. Certainly not I. Certainly not he. There is no need for him to feel badly or helpless. Wow - there is no need for ME to feel badly or helpless. I AM LOVED.
I am reminded of a parent carrying a disabled girl in a store one day, so that their hearts were close together. The parent could not remove her pain, but he could allow her to engage the world in her own way and love her all the while.
Thank you for helping me clarify in my own mind that I am perfect and whole, and that the love I have within and that I receive from others is unconditional and complete!!"
"How lovely to synchronistically find this post.
I live with chronic pain from a moderate disability, and the pain affects every waking moment of my life. I am never free from it. Some days are better than others.
I learned long ago that nobody wants to hear about it.
Then, I shut down and dropped out of society.
Now, as I find myself surrounded by people who love me unconditionally, by design, as I consciously choose to love them unconditionally with reckless abandon. I find that we (as a group) struggle with my inability to navigate life as an ordinary person with no pain would be able to do.
I want to participate in my life and to experience all things, as does the Creator of All That Is.
I have a dear friend who expresses a desire to remove my pain, and a level of frustration that he cannot do so.
After having processed this a little bit, I feel confident that I need to communicate with him that he does not need to feel badly for me because I am in pain, but rather, simply to honor my needs by loving me unconditionally (which he already does). If this means carrying something for me that I cannot, or allowing me to take a time out and rest rather than join a group for an outing, or whatever - no one could ask for more than that. Certainly not I. Certainly not he. There is no need for him to feel badly or helpless. Wow - there is no need for ME to feel badly or helpless. I AM LOVED.
I am reminded of a parent carrying a disabled girl in a store one day, so that their hearts were close together. The parent could not remove her pain, but he could allow her to engage the world in her own way and love her all the while.
Thank you for helping me clarify in my own mind that I am perfect and whole, and that the love I have within and that I receive from others is unconditional and complete!!"
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Re: from a thread about communication and pain...
Tue, June 26, 2007 - 12:04 PMthanks for the post Dave.
i need to put into practice the idea that nobody wants to hear about it. i've driven away many friends over the years.
what do you say when asked " how's it going?" -
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Re: from a thread about communication and pain...
Tue, June 26, 2007 - 5:20 PMGood question. First, I have to consider the source of the question, who is asking it, their level of awareness, the reason they asked the question - most of the time if it is not someone that I personally know, I avoid all "how are you" talk.
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Re: from a thread about communication and pain...
Thu, June 28, 2007 - 2:56 PMThanks Dave. I needed this today. I lay in bed crying this morning as my boyfriend left for work. He said he didn't know what to do for me, I don't know what to do for me. I know he cares and I know he does what he can. Sometimes I think he's the strong one, to be with someone that contends with this, and to be so patient and caring. I think about how this affects him, and those around me. Most people haven't seen the bad days. I drop out of society when it gets bad. I'm not sure what people think during those times. I just hate instilling that feeling of helplessness in people. It really, really helps that you are so open here, and expressed exactly what I have been feeling all day. Hugs Dave! We are not alone. -
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Re: from a thread about communication and pain...
Mon, August 13, 2007 - 8:49 AMI feel very alone. Somehow unconditional love for others seems to backfire for me. I really am fine with being present with abilities, lack of, or difficulty. I do not shy from it.
But it seems that when i share my story, I still get people who think i'm faking...even folks who know better...folks probably wrapped in their own struggles of denial.
i really need some unconditional love right now.
where do you find that? -
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Re: from a thread about communication and pain...
Mon, August 13, 2007 - 2:09 PMI needed that today of all days. The idea of ending it was very very tempting. And it's not so much that the pain is unbearable today...it's just constant...the level hasn't lessened for weeks. And all I wanted to do today was sleep. The Golden Gate Bridge is very close. Luckily so are a few friends. Not many...but enough. -
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Re: from a thread about communication and pain...
Mon, August 13, 2007 - 3:21 PMYAY! I am so glad you guys are here.
Some days are better than others, I'll vouch for that.
And I, too, have spells where it is relentless.
There are things I can do to minimize my misery, and I am working hard with a physical therapist at this time. It is slow going, but important work I must do.
Stay steadfast in your desire to create a better life for yourself. Last time I was in crisis, I made a list of what was absolutetly unacceptable to me and what I felt must change. I then set out over a 6-8 week period attacking at full blast. That's when I got into the physical therapist (after MRI and EMG and neurosurgeon and pain management failed to identify much of anything). There are things on my list that have not changed yet, but I can accept that, as long as they remain on the list and ready to be attacked when I have the resources.
I have faith that things will change for me because I have already seen change.
LOVE TO ALL -
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Re: from a thread about communication and pain...
Wed, August 29, 2007 - 6:13 PMImportant thread, Dave, but oh so heavy. It's so exhausting to tackle all of the emotional, psychological, and spiritual confusion and suffering that constant pain can cause. I know for me, I feel like I need all the strength I have to fight the PAIN, the rest of it is what often puts me over the edge.
Moonmom, I get heaps of unconditional love from my dog - not quite the same, I know, but she gives me that sense of NOT being alone without the heaviness of being with people.... especially when there are stupid fuckers out there who even think the words "faking it." How infuriating. I've been there too, and for me, I can only ever say to hell with them, because they will never know, and they will never get it, but you do.
The other day my seat neighbor on a plane asked me how I had hurt myself (I was walking with my cane) I very briefly explained that I had a joint disorder, not an injury. He actually laughed and said, Aw, you're too young for that kind of thing. I was not laughing, but he was, and it wasn't in a nice and friendly way, either.
So, it would have been ok for me to tell him to fuck off, right? I didn't - too exhausted from the travelling, I just put on my headphones and ignored him for the rest of the flight.
** SIGH **
Z
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